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If you have received a Comfort Bag, or would like to share feedback on our items or cause, please do so here. We care about your thoughts and would love to hear ideas you have on how we can improve, new items we can include, etc. Thank you for your support!

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#3
Sheila Jetton (Saturday, 12 February 2011 18:38)

Just wanted share my thanks as well for ALL that you do! When researching lung transplants for infants/toddlers it is easy to find all of negative things, and the doctors ensure you know ALL of them. But to be able to find other families who "have been there" and survived gives us hope that there are good things to come. This journey is not easy, but the support your organization provides means more than you know. Thank You Nicole and Fay's Friends for dedication and love for other transplant families!!
Sheila Jetton
Mom to Elizabeth waiting for lungs
#2
Shireen Mohiuddin (Tuesday, 08 February 2011 18:08)

I just wanted to say, I think you are doing a wonderful job!

I recently came across this site and I have to say it has brought a little more hope in me to see that Faybree is a strong survivor. My daughter, born August 9th of this year, was also diagnosed with ABCA3 and we are also awaiting a double lung transplant. I think we are the only case in Canada right now. My daughter will be two months old in a few days and she is hanging in there. I am so inspired by your story as well as Wrenn's, who I think is just a little older than my daughter. I am so pleased to hear of her transplant....I actually read about it last night and I just cried and cried and cried....because only another mother in the same situation would be able to understand that joy/releif of their child's only chance of survival.

I pray that your good deeds be rewarded friend. Is there any way I can get in touch with Nicole Parris personally? And yourself? through email perhaps?

Again, I think you are doing a wonderful job. I have so much more to say but not enough time at the moment. Just wanted to know how I could become a friend.

Take care,
Shireen Mohiuddin
(Toronto, Canada)
#1
Nicole and Andy (Thursday, 03 June 2010 15:53)

I am so EXCITED OVERFLOWING IN JOY You name it to see how you have turned what would seem like a tradegy into something much more than that: HOPE! I pray that your endeavors are blessed beyond measure and that everything you put your hand to will prosper and change someone else's life. I am truly blessed to know you and to have met you, your family and of course, Miss Faybree (although she doesn't know me!) I love you guys!