On January 14th, 2008, we welcomed our first child after more than a year of trying to conceive. Our daughter, Faybree Jane Neufeld, was born healthy and beautiful; sent home to the family who had prayed so hard for her arrival. Two short weeks later Faybree was rushed to the emergency room, barely breathing. After weeks of waiting and dozens of procedures, Faybree was diagnosed with Surfactant Disorder, an extremely rare genetic mutation known only as ABCA-3.

There is no cure for this disease. Hope lies in a double lung transplant and years of delicate follow-up care. Teams of doctors and researchers from across the country networked to make this happen and the healing hands of Washington University at The St. Louis Children's Hospital acheived it. The risks are great with this procedure, but the reward is much greater. This was Faybree's only chance for survival.  We temporarily relocated to St. Louis for an extended duration in order for Faybree to receive the kind of treatment she deserves...the transplant that saved her life.

Faybree was transported to St. Louis, MO from Orlando, FL, where the flight alone was a huge risk, but she did great! She made it to St. Louis and keeps proving everyone wrong!. Faybree is a fighter, she is a strong little girl. We know she can beat this.

 We are currently in our new home in Virginia and enjoying the North. We do miss our true home, Florida and our family. Please read our journal updates to see how Faybree is doing since recieving her double lung transplant on April 27, 2008!

Updated photo of Faybree J. Neufeld in the park in March of 2011.